In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!

Sunday, May 27, 2007

Our new pool!

This has been Mike's baby over the last few days. We can take it to FL with us as well but for the next couple months it will be a welcome retreat from the heat!!

Sunday, May 20, 2007

Gus & Mama Bear found a new home...

So today was the culmination of a few years of saying "should we? or shouldn't we?". My allergies have been a constant struggle since we got Gus 4 years ago. In yet another moment of denial we decided to add Mama Bear to the mix. With Mike working more and more it seemed he never had time to clean the litter box and now that Noah is older he's always going after Gus which usually ends up with one or both of them upset. So now they are both Vermont Kitties.
A very nice lady drove all the way from VT and scooped them up. It was devastating. I never thought it would be so hard, ever. I cried all afternoon and into the evening. Mike was going to call in sick just so I didn't have to watch Noah but I wasn't (quite) that bad.
So now our sweet litte Mama Bear and Gus are living with someone else and we'll never see them again. Ugh, it feels terrible. It's messing with my mind too. Today Mike went with Dad, David & Mikey to Cooperstown. After he left I turned to Noah and thought to myself "Ok what do we now?" I had this instant flashback as if he had gone off to sea and we were alone. It's aweful. Luckily I know we've done our time and he is coming home tonight. And I know Gus and Mama will be fine, especially since they are together. I just never thought it would be so hard to give them up.

Thursday, May 17, 2007

On the road again...

Well we've decided to move to Ocala, Florida! We have been talking about it a lot since we were there in March. It will be nice for Noah to get to know his Dad's family better. I get to be closer to the beach, and Mike doesn't have to shovel snow anymore, win-win-win!
It's a big move and of course we'll miss my family here in NY but we're ready for a change. Mike was always going to make Noah a Gator one way or another! ;o)
So come August 1st we'll be...on the road again!

Tuesday, May 15, 2007

When the cats away....

Ok so this is what I get for thinking the BAG would keep him occupied for 2 minutes while I switch the laundry. He has so many in his mouth he can barely keep his lips shut.


Saturday, May 12, 2007

This cracks me up everytime!

Monday, May 7, 2007

Sunny and 70, perfect for the park!!

We discovered this beautiful park called the Crossing at Colonie. They had a giant pond with fish and a gorgeous playground. Noah was absolutely in love with the space shuttle!




Friday, May 4, 2007

Hunting Wabbits

This one is in honor of Grandpa Don. He's wearing his camo and riding a horse. Don't they hunt fox on horseback?

Thursday, May 3, 2007

Happy 30th Mike!

Well, unfortunately Mike had to work all day on his birthday but Noah and I brought him some cake and balloons to work. Here Noah is displaying his new found talent of plugging his nose, and then laughing hysterically. He also loves Daddy's visor!

Tuesday, May 1, 2007

He's going to give me gray hair!

One of Noah's favorite things to do in life is torture his parents. He knows he's not supposed to be up there but he slides his little leg over and leans as far as he possibly can without falling....which he has mis-calculated 2 or 3 times and then he gets right back up again!