In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!

Friday, August 28, 2009

We all scream for ice cream!

Throughout the entire summer we have heard the distinct sound of the ice cream truck jingling by. Noah routinely runs to the window or down the driveway to watch it drive by. In all that time however I do not think he ever wondered what the purpose of the ice cream truck actually was. Last night when we heard the truck Mike suggested we go over and get something. So we all took off down the driveway and as we got closer Noah just stood there looking stoically at the man in the side window.
He was completely speechless. I asked him what he wanted and he just stood there as if I was speaking a foreign language. It was actually hilarious because we could tell he was trying so hard to figure out what this all meant. You mean the truck brings ice cream to your house? And then you can eat it right there? His mind was boggled.

I picked out a SpongeBob pop because I knew he would recognize the character. I thought Noah was finally adjusting to the whole ice cream truck thing until the driver piped in. "You better hurry up and eat that before he (SpongeBob) eats you." Wow. I don't suppose there's any sort of formal training for his position is there?
As it turns out SpongeBob was made from fruit punch and cotton candy sherbet. It actually tasted worse than you can imagine so Noah ended up eating most of my Chipwich instead. Now those are good!

Monday, August 10, 2009

What's in a name?

It occured to me this morning that perhaps I have too many nicknames for Noah. As we were getting into the car I said "I love you my little peanut!". Noah quickly corrected me proclaiming "Mama I'm not a peanut, I'm a muffin!". Poor boy.

So I better get them all down on "paper" so that when he's 16 and won't let me call him Goose I'll remember the good 'ole days!

Goose, Goose da Boose, Butter Bean, Beany Beans, Beans, Love Muffin, Peanut, Gooby Goo, Honey Bunny, Biscuit, Bisky Bisque...I am sure there are more but that's all I can think of!