In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!

Thursday, September 13, 2012

16 weeks old and FINALLY healthy!!!


What a summer it has been! In the 16 weeks since our little peanut was born we have struggled to get her healed and healthy. As of last week I can finally say her back closure is completely healed and infection free! Ya-hoo!!

We also had some more good news this week. We had a visit from the NYS Early Intervention program to evaluate Lucy and any special needs she may have. We had a physical therapist and a speech language pathologist in our home. After spending about an hour with us they both looked at me and said well technically she qualifies for the program because of the spina bifida but there is really nothing she needs. Her cognitive skills are right on schedule and her physical abilities are as well. She has no delay or weakness in her legs, feet, or toes. None. At all! 

I know there isn't a doctor in the world that could guarantee what lies ahead for our little lady, but for right now we think that's pretty darn good news and we couldn't be happier!