In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!

Wednesday, June 13, 2007

Happy Father's Day Grandpa!

Noah is keeping a close eye on grandpa while he plays with his new Blackberry!


Thursday, June 7, 2007

We are moving next week!

Well, Mike unexpectedly lost his job this week so we have decided to move up the big move! They had already begun showing the house and when I hinted that we could be out before Aug. 1st the new tenant jumped at the chance. So now we are leaving June 15th! Mike is driving down on Thursday and Noah and I will be flying down Friday morning. It is not at all how we had planned it but we are just rolling with it. Fortunately (unfortunately) the new tenant is buying our pool so it will not be making the trip with us.

Friday, June 1, 2007

My boys...

The water has only gotten up to about 76 degrees so Noah hasn't gone in yet but he likes to throw things off his raft and make Daddy fetch them for him!


Sunday, May 27, 2007

Our new pool!

This has been Mike's baby over the last few days. We can take it to FL with us as well but for the next couple months it will be a welcome retreat from the heat!!

Sunday, May 20, 2007

Gus & Mama Bear found a new home...

So today was the culmination of a few years of saying "should we? or shouldn't we?". My allergies have been a constant struggle since we got Gus 4 years ago. In yet another moment of denial we decided to add Mama Bear to the mix. With Mike working more and more it seemed he never had time to clean the litter box and now that Noah is older he's always going after Gus which usually ends up with one or both of them upset. So now they are both Vermont Kitties.
A very nice lady drove all the way from VT and scooped them up. It was devastating. I never thought it would be so hard, ever. I cried all afternoon and into the evening. Mike was going to call in sick just so I didn't have to watch Noah but I wasn't (quite) that bad.
So now our sweet litte Mama Bear and Gus are living with someone else and we'll never see them again. Ugh, it feels terrible. It's messing with my mind too. Today Mike went with Dad, David & Mikey to Cooperstown. After he left I turned to Noah and thought to myself "Ok what do we now?" I had this instant flashback as if he had gone off to sea and we were alone. It's aweful. Luckily I know we've done our time and he is coming home tonight. And I know Gus and Mama will be fine, especially since they are together. I just never thought it would be so hard to give them up.

Thursday, May 17, 2007

On the road again...

Well we've decided to move to Ocala, Florida! We have been talking about it a lot since we were there in March. It will be nice for Noah to get to know his Dad's family better. I get to be closer to the beach, and Mike doesn't have to shovel snow anymore, win-win-win!
It's a big move and of course we'll miss my family here in NY but we're ready for a change. Mike was always going to make Noah a Gator one way or another! ;o)
So come August 1st we'll be...on the road again!

Tuesday, May 15, 2007

When the cats away....

Ok so this is what I get for thinking the BAG would keep him occupied for 2 minutes while I switch the laundry. He has so many in his mouth he can barely keep his lips shut.


Saturday, May 12, 2007

This cracks me up everytime!

Monday, May 7, 2007

Sunny and 70, perfect for the park!!

We discovered this beautiful park called the Crossing at Colonie. They had a giant pond with fish and a gorgeous playground. Noah was absolutely in love with the space shuttle!




Friday, May 4, 2007

Hunting Wabbits

This one is in honor of Grandpa Don. He's wearing his camo and riding a horse. Don't they hunt fox on horseback?

Thursday, May 3, 2007

Happy 30th Mike!

Well, unfortunately Mike had to work all day on his birthday but Noah and I brought him some cake and balloons to work. Here Noah is displaying his new found talent of plugging his nose, and then laughing hysterically. He also loves Daddy's visor!

Tuesday, May 1, 2007

He's going to give me gray hair!

One of Noah's favorite things to do in life is torture his parents. He knows he's not supposed to be up there but he slides his little leg over and leans as far as he possibly can without falling....which he has mis-calculated 2 or 3 times and then he gets right back up again!

Friday, April 20, 2007

A beautiful day in the Northeast!


It was SO beautiful today! I decided to take Noah out and play with his new chalk. He is a very talented artist...oh the rainbow isn't his...he did the little yellow squiggly to the right of the cloud :oD

Wednesday, April 18, 2007

Worthy of Broadway

I would like to point out there is not a tear on his face. Wave a toy in front of him and he'll forget it ever happened. Is this why parents always say "wait 'till you have your own children..."?

Sunday, April 15, 2007

Ahh, an afternoon without changing diapers!

Noah was so happy to be outside. Luckily we have a long driveway so when he takes off running he can't get too far! We were outside waiting for Grandpa so I could go on my first "playdate" since Noah was born. Thank you for having me Nicole!!!


Saturday, April 14, 2007

My little man is getting so big.

Sometimes I look at him and I just think he has grown up so fast already. Here he was being a little smarty pants trying to get the milk out of his sippy cup.


Monday, April 9, 2007

These were in our backyard this afternoon!

I was upstairs and heard a rustling in the backyard so I looked out and saw these guys drinking from the creek about 20 yards from the house. If you look close you can see a third one to the left. So cool!

Tuesday, April 3, 2007

Cousin Ayla gets a new toy!

Ayla is getting so big...7 months old already! Here is Noah in his jumper at 7 months also.
Noah was happy to let his Cousin Ayla borrow his favorite jumper, he's such a big boy!

Monday, April 2, 2007

Can you feel the energy this child exudes?!


Ahh...Calm


Sunday, April 1, 2007

Noah's 1st Coloring Book


He was really more interested in chewing on the crayons but I had fun coloring the polka dots ;o)