In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!

Monday, December 31, 2007

Winter Wonderland

This morning we awoke to several inches of perfectly fallen snow. This is the tree outside our front window. The past few years I have captured a number of pictures of Mike outside shoveling, and each time I get a new one I have to laugh because I know he's grumbling "I hate snow" under his breath. To be fair our landlords are quite diligent about clearing the way, this particular day Mike had to clean off the car and shoveled himself a path to it. So I snapped my one and only shoveling picture of the year when I had the chance! :oD

Sunday, December 30, 2007

Noah's new Booster Seat

Here is the third, and hopefully last, of Noah's car seats. For the last month or so he has been driving us crazy by completely unbuckling the 5 point harness on his Convertible Car Seat. We had also been in the market for a new seat because after passing 40 pounds by his 2nd birthday he had unfortunately outgrown the old one. We decided to try the booster instead of getting a higher capacity toddler seat. We thought (and hoped and prayed) that with the seat belt buckle off to the side he wouldn't bother it. We were right....for the first 20 minutes he was in it. So we are back to square one on that front. The other thing is that technically they say kids should be 3 before being in a booster. I don't really understand the age requirement because they must also make the height and weight as well. Noah is 41 pounds and 38" tall (last measured 8 weeks ago!) so he fills out the seat nicely as you can see. It is such a hard thing trying to find the best way to keep them safe. What seat is best and what style is best, and what kind of tape is strongest to keep my son from getting out of his seat?!

He looks thrilled, huh?

Saturday, December 29, 2007

Go Giants!

Mike invited Dad and my brothers over to watch the Giants/Patriots game. Even though the Giants lost it was a great bonding experience fueled by assorted beers, meats and cheeses! ;o)

Friday, December 28, 2007

Pizza Party at Uncle Al's & Aunt Nancy's!

Uncle Al and Aunt Nancy were kind enough to host a Friday night pizza party for the Massaro clan with various significant others and our offspring. Sherry and I were a little worried about the kids being up past their bedtimes but they were in rare form. It was a nice way to end a hectic few weeks, thank you Uncle Al & Aunt Nancy!!

Mikey & Mike
Grandpa & Ayla
Ayla
Ayla & (Mike trying to hold up) Noah


Tuesday, December 25, 2007

Merry Christmas!

This year Mike and I hosted my parents and brothers. It was nice to have everyone together eaiting and having a good time. Noah and Ayla (my niece) are getting a little bigger now so they are fun to interact with. I ended up taking a bunch of pictures, many of them on the silly side but fun none the less. I thought it would be nice to get a few pictures of me and my brothers together, something we haven't done in several years...they were less than cooperative and the silliness ensued...
Mike & I finishing dinner.
David & Ben gave eachother the SAME card!
Noah & Ayla setting up his new craft station.
Next year we're going to need a kids' table!

Christmas Cont'd...

Me & my brothers...
Again....
Mom & I
My Peppermint Ice Cream Cake , so yummy!

Saturday, December 22, 2007

Christmas Suit?

This one is SO coming out every year until he's 30. For no apparent reason Noah decided, in december, that he does not want to wear clothes inside. He does not, however, have an issue with his boots.

Wednesday, December 19, 2007

I'm not tired

I asked Noah if he was ready to (please oh please!) take a nap and he furiously said "No, I no wanna", aprox. 10 minutes later here he sits....

Monday, December 17, 2007

Uncle Mikey's

This is (my brother) Mikey's first christmas in his own place so we went over to help decorate his apartment. Here is Noah hanging liquor bottles on the tree. ;o)
Noah & Cousin Ayla taking a break!

Thursday, December 13, 2007

Sleep Optional

I have been slacking on my blogging this week. Actually I'm behind on my homework too :o/ Noah has been able to climb out of his crib for a few weeks now (he can even put the bar down himself) but for the past week he has been in a "sleep optional" phase. We have to pull a Supernanny and put him back in bed about 5 times before he stays, and then he wakes me up at 4:30am every morning for the last 4 or 5 days. Yes that is a 4. He absolutely refuses to go back to bed. Short of tying him to it I don't think we can do much else. So we get up at 4:30am and plug the christmas lights in and watch Cars....again.

Sunday, December 2, 2007

Our first snowfall!

The snow really isn't that interesting but this video cracks me up. Whenever Noah sees a phone he MUST have it. I made the mistake of telling him to "say hi" to which he had a minor meltdown thinking I was holding a phone instead of a camera.

Sunday, November 25, 2007

Happy Birthday David

My brother turned 31 yesterday so Noah and I went over while Mike was working late. Here is Noah jumping backwards on the couch attempting to give Grandpa a heart attack!


Dad, Ayla, Sherry, Noah, Mom & David

Thursday, November 22, 2007

Happy Thanksgiving

Mike and I hosted my family this year for the first time which was very fun. We'll cook the turkey a tad longer next year ;o) but otherwise it went off without a hitch!
"Howard" the turkey guarding the table:
Noah waiting patiently to eat!:
Mike & Mikey guarding their pie:

Tuesday, November 20, 2007

Cage Free

Noah has officially broken out of his crib. He was put in his bed for a time out and about a minute later he came walking out into the living room. Mike and I just looked at eachother and then threw him back in to get a video lol.

Sunday, November 18, 2007

Scotch tape and Sharpened Pencils

I am officially a full time student! Mike has been attending the University of Phoenix online for the past few months and I just decided it was time for me to go back as well. So my classes started today and i'm offically on my way. The first few classes are mandatory but all of my transcripts, including Siena, are on their way to be evaluated for transfer credits. Within the next few weeks I should know exactly where I stand towards graduation, woooohoooo!

Sunday, November 11, 2007

The Cookie Caper


Thursday, November 8, 2007

Here is Noah taking teddy for a test ride in his new Jeep wagon that Grandpa & Grandma got him for his birthday. Instead of a nice cold drink, he likes to keep his half eaten banana in the cup holder, yum.

Wednesday, October 31, 2007

Happy Halloween!

Here we are on our front porch. In case you can't tell I was dressed as an L.L Bean employee, lol. Mike was dressed as ummm Noah's Daddy and of course there was our little lion. We spent the majority of the eveing at my parents' house. Noah had a little fever and wasn't quite up to par but we had a good time anyway.




Me, Noah, Mike, my niece Ayla, brother David, brother Ben and sis-in-law Sherry.

Monday, October 29, 2007

Happy Birthday Noah!

Noah is two years old, yah! It's amazing how old that seems to me. I think his favorite thing about his party was that the Apple Cider donuts were unguarded!



Monday, October 22, 2007

Wrap Time

Noah absolutely loves his bath, and his latest thing is getting "wrapped" afterward. He loves it when we tuck the towel under his arms and he walks around like he's at the spa. Today he decided to make a pit stop on the way to his room to pose for a quick picture.