In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!

Thursday, June 28, 2007

Bugs, Bugs, Bugs

The muggy, hot florida weather is like a breeding ground for anything and everything. This Banana Spider has been haunting our path to the backyard for a couple weeks now. I'm told he is a small guy at about 3" toe to toe.

These may look like ordinary little grasshoppers....but they're actually about 3" long and 1" thick....nasty!


Now these little guys aren't so bad. They tend to dart in front of you as you walk out of your door. I think they are cute! This one has a bright orange little tuft that blows up under his chin every once in a while. After about 5 minutes of being focused on him I gave up trying to catch it.



It's only 88 today, woohoo!

It's too hot to go outside so Noah likes to mow the lawn inside! ;o)

Monday, June 18, 2007

Day three, almost there!

Once we got on the road the trip was pretty uneventful....that is until we started rolling into Florida with no AC. We got to Ocala on one of the hottest days of the year. It was 97 deg and about 1000% humidity.


Sunday, June 17, 2007

Day Two

Today was a much better day. We all got a good night's sleep and were on the road by 6am. Noah was able to sleep a bit in the car and all was well with the Jeep! We ended up stopping for the day around 3:00pm in North Carolina. We took a dip in the pool and cooled off for an early morning. It's starting to get really hot!


Saturday, June 16, 2007

Day One: The Road to Florida

Well we got a bit of a late start this morning after trying to cram everything into the Jeep. Finally we were on the road. We got just past the 24 toll plaza and the car started to buck a little. Mike and I looked at eachother and moments later the car was completely out of gear. Long story short the transmission line had popped off and we lost about half of our fluid on the thruway. After a trip to Mikey's friend at Aamco we were back on the road.
Unfortunately Noah was having some problems going potty and was having screaming fits about every 15 minutes. On our way into New Jersey the sky filled with heavy rain so we decided to cut our losses and call it a night somewhere past Newark. Day One: Unsuccessful but atleast it's over!

Friday, June 15, 2007

Final Preperations

Mike & Mikey put in some time changing the oil and getting the Jeep ready for the big trip.

Wednesday, June 13, 2007

Happy Father's Day Grandpa!

Noah is keeping a close eye on grandpa while he plays with his new Blackberry!


Thursday, June 7, 2007

We are moving next week!

Well, Mike unexpectedly lost his job this week so we have decided to move up the big move! They had already begun showing the house and when I hinted that we could be out before Aug. 1st the new tenant jumped at the chance. So now we are leaving June 15th! Mike is driving down on Thursday and Noah and I will be flying down Friday morning. It is not at all how we had planned it but we are just rolling with it. Fortunately (unfortunately) the new tenant is buying our pool so it will not be making the trip with us.

Friday, June 1, 2007

My boys...

The water has only gotten up to about 76 degrees so Noah hasn't gone in yet but he likes to throw things off his raft and make Daddy fetch them for him!