In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!

Saturday, June 16, 2007

Day One: The Road to Florida

Well we got a bit of a late start this morning after trying to cram everything into the Jeep. Finally we were on the road. We got just past the 24 toll plaza and the car started to buck a little. Mike and I looked at eachother and moments later the car was completely out of gear. Long story short the transmission line had popped off and we lost about half of our fluid on the thruway. After a trip to Mikey's friend at Aamco we were back on the road.
Unfortunately Noah was having some problems going potty and was having screaming fits about every 15 minutes. On our way into New Jersey the sky filled with heavy rain so we decided to cut our losses and call it a night somewhere past Newark. Day One: Unsuccessful but atleast it's over!