In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!

Saturday, July 14, 2007

Well.....we're moving back to NY. There are a lot of reasons not the least of which is the scorching heat and humidity. The first couple of days it was 97 with 100% humidity. Honestly, did you know that was even possible?! I really felt claustrophobic. As soon as you walk outside it's like you can't breath, the humidity is almost suffocating. It creeps me out just thinking about it. Thankfully we only went a few weeks before we were able to get the AC in our car fixed but that just didn't seem to ease my mind. I think it has a lot to do with having Noah and wanting the holidays and seasons to be special for him. I kept thinking about fall coming and his birthday being Oct. 29th. I just wanted to be able to put a cute little sweater on him and plop him in a wagon to pick out a pumpkin.
There are practical reasons to moving back too but I definitely realized how much I love having the seasons and how much a part of me they are. I love the beach but I'd take a crisp fall day over a suntan anytime. Oh and I had to promise Mike he'd never have to shovel snow again if he moved back to NY...so if we get a storm you'll know where to find me! ;o)
Thank you to our family who have bent over backwards helping us. We're going to add this chapter to our book of life experiences and hopefully learn from our mistakes.