In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!
Here is a picture of the new store being built in Colonie Center. It's Grand Opening is set for September 14th so mark your calendars! ;o) They will be open for 24 hrs/ day for the first weekend so if you need a kayak at 3am you know where to go!
