In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!

Monday, February 6, 2012

Amnio Results

We finally got a call from the genetic counselor on Wednesday. The amnio showed an elevated AFP level which indicates the lesion is open. This doesn't really tell us a whole lot other than the fact that we need to pursue fetal surgery to prevent any further damage before birth. Next we will be going for a surgery consult at the Children's Hospital of Philadelphia. They have an intensive program of testing that will give us more information about our daughter's diagnosis and whether we are candidates for the fetal surgery.