In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!

Friday, February 10, 2012

How would you like to pay for that?

Our consultation at the Children's Hospital of Philadelphia (CHOP) has been scheduled for over a week now. We are discovering however that it's not always as easy as just making an appointment. We now have to deal with insurance and provider networks and specialists. 

I have heard stories of people being denied transplants and other life saving procedures because insurance would not approve it. Somehow it doesn't seem like it could happen to you though. You assume that after paying hundreds of dollars in premiums every month the benefits will be there when you need them. 

According to the billing coordinator at CHOP our visit will most likely be approved, but not without jumping through a few extra hoops first. We also may not receive that approval until a day or two before. Nothing like waiting until the last minute!