In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!

Monday, May 14, 2012

Little Miss Difficult

It is already clear we are going to have a feisty little one on our hands. We have hardly had a single test where she cooperated. For the past month we have been subjected to weekly checkups, non-stress tests and ultrasounds. With each exam there is a certain criteria the baby must meet to be satisfactory. During the non-stress test the doctor is looking for a certain level of ups and downs in her heartbeat. After our first test lasted almost 40 mins passed the standard 20 mins, the nurse suggested the next time I bring a snack to try to stimulate the baby. So this week I came prepared with juice and granola. Lucy did cartwheels for the non-stress test and then completely fell asleep for the ultrasound. It's frustrating that because I fall under the "high-risk" umbrella due to the spina bifida we must be subjected to all these extra tests, even though we know there is nothing wrong...other than what we know is wrong. Other than the hole in her back, Lucy is perfectly healthy. Hmm. It's amazing how far the mind can progress in a matter of months. Our little peanut will surely face some challenges in her life. But in reality she will have much more in common with her peers than not.