In May of 2012 Kenny and I welcomed our baby girl, Lucy Grace. Lucy was diagnosed with Spina Bifida when I was 20 weeks pregnant. Like many other families our experience was difficult and painful to talk about in the beginning. I have attempted to document our journey with SB so our family and friends can stay informed. Although we had some serious medical challenges in the first few months, Spina Bifida does not define our daughter or our family. Kenny and I are so lucky to have two kids we adore. This is our life with a 7 yr old and an infant....with an SB twist!

Thursday, June 25, 2009

For Love of His Boy

That is really what all of this is about. The Love of The Boy.

Seven plus years is a long time to spend not knowing what you want in life. Not knowing how to deal with life. It is a long time to love someone, knowing that you are not what they need you to be.

There is no doubt in my mind that I love Marianne, she is everything anyone could ever want in a friend, wife and mother. It is of no fault of her's that this situation has come to be. She gave me a beautiful little boy, someone who I cannot think about without wondering how I got so lucky. He is me. My little man, my buddy.

I can't look back at my past and want it to be any different. I can't say I would not want to take the path that I did, because that would be a life without Noah. I don't ever want that life.

Marianne and I will be fine, and we want to ensure that Noah will have the greatest life possible. We want him to know that he has a loving family, despite any issues or complication that are a part of that. We need him to know that he is loved. That everything is OK. That his parents will always be there for him.

This is a new page in both of our lives. We still love one another and that will never change.